MY
MULTIPLE SCLEROSIS
MS = MonSter
I made this
page for family and friends who wish to keep abreast of my MS
treatment and testing. I was diagnosed with definite MS
on 3/12/02. I will post as often as possible, but you
may also email or call me for more specific information and I
will gladly answer your questions.
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I was hospitalized on 11/21/03 for an exacerbation.
I was finally sent home with a walker and a bath bench.
I had difficulty walking for a couple of weeks, but this
has subsided. My MRI on 11/10/03 showed that my largest
lesion (10 mm) was active. This affected the major
CNS motor pathway (hence the reason I had difficulty
walking, etc.).
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I began
Avonex injections again on 4/25/03.
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My second
fall 1/14/03. It wasn't any big deal. I
slipped going into the kitchen and landed on my butt!
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My first
fall. I fell on 11/3/02. I went to my PCP who
ordered a hip x-ray (remember my left hip was already
bothering me) and a spinal MRI. The results of the
x-ray are normal. The MRI is results are on the test
page.
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My most
recent visit (10/9/02) to the neurologist showed a NORMAL
neurologic exam :)
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At my
last neurology appointment (7/23/02) my neurologist said
that I was as good as I was going to get. That
really sucks!!
What is
MS?
Multiple Sclerosis (MS) is
an inflammatory disease of the Central Nervous System (CNS)
(the brain and spinal cord). Predominantly, it is a
disease of the "white matter" tissue. The
white matter is made up of nerve fibers which are responsible
for transmitting communication signals both internally within
the CNS and between the CNS and the nerves supplying rest of
the body.
In people affected by MS,
patches of damage called plaques or lesions appear in
seemingly random areas of the CNS white matter. At the
site of a lesion, a nerve insulating material, called myelin,
is lost. More
about demyelination
While genetics may make a
person more susceptible to contracting MS, there has been no
evidence found to show a direct genetic inheritence link.
More
about who gets MS.
Prognosis
The expected outcome is
variable and unpredictable. Although the disorder is
chronic and incurable, life expectancy can be normal or nearly
so, with a life span of 35 or more years after diagnosis
occurring commonly. Most people with MS continue to walk
and function at work with minimal disability for 20 or more
years.
The amount of disability
and discomfort varies with severity and frequency of attacks
and the part of the central nervous system affected by each
attack. Commonly, there is initially a return to normal
or near-normal function between attacks. As the disorder
progresses, there is progressive loss of function with less
improvement between attacks.
Complications
- progressive disability
- urinary tract
infections
- side effects of
medications used to treat the disorder
To
see understand more about MS, please see the following sites:
MEDLINSplus
Health Information
WEBMD
Health
HealingWell.com
Other
information regarding my condition:
Labwork, Spinal Tap and MRI Results
Symptoms I currently experience
What I am currently doing for
treatment
Medications/Vitamins
RESOURCES
and information for those with MS
Famous
People with MS
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